Last week I wrote about my possible “aging out of” lupus diagnosis.  I was so confused by this terminology and had been googling ever since my rheumatologist appointment.  I had a list of questions a mile long for when she called me back.  Well, the results are in!  Sort of.

After speaking with my rheumatologist extensively, she thinks I am in remission.  OMG!!!  YES!!!  OMG!!!  This actually happens!!!  We went over all my bloodwork and everything was explained to me.  I still have a blood disorder, but hell, my lupus is dormant!  I did not let this amazing news deter me from the rest of my questions.

I still have horrible fatigue and joint pain.  The joint pain is tolerable, yet still there.  When I asked her about these 2 specific symptoms she said, “Well you are at that age.”  Age?  What age?  This crazy lady is talking about menopause!  When I blurted out, “WHAT!!???” she laughed.  Keep in mind I am pretty sure she is young enough to be my daughter.

I have been processing this menopause comment for days now. I am only 47, but think and behave like I am in my 20’s.  I am seriously blown away.  So, here is the fun part, menopause does NOT care how old you are!  This could be a quick and easy road or a journey that lasts years!  Seriously?  Just when I think I am getting a much-needed break, the other shoe drops.

Forget about that nonsense, and let’s go back to the lupus.  I received my blood results and sent them to a friend that also happens to be a rheumatologist.  I really needed a second opinion.  He was not thrilled with the results, and wants more tests in a few months.  He also told me to enjoy my “remission.”  Here is where both doctors agree 1.  This can be temporary 2.  My diet may be a key factor in the remission 3.  Both told me not to change a thing 4.  A follow up is necessary in 3-6 months 5.  Lupus is a mystery disease and we may never have the answers

This is what I know 1.  I feel fabulous 2.  I know keto is not the key factor, but THE factor for why I am in remission 3.  I will never change a thing and all nay-sayers can go F themselves 4.  I will continue to have my kidney function and all other standard testing done regularly 5.  Lupus is a mystery and I have found what works for me so, I am sticking to it

All I have been going through for 19+ years and will continue to go through is why I fight and advocate.  One doctor says remission, the other says, “remission.”  I know I have said this before, but the healthcare system needs to do better.  The least they can do is get on board with each other regarding this disease.

I am going to continue eating keto/AIP to keep my inflammation down and stay active with yoga.  My mind will continue to stay positive and hopefully in 3 months my results will be even better.  As for that menopause comment, that’s a post for another day!